Helping people with dementia and Parkinson’s

SCAMPI’s primary objective is to co-design and develop a new intelligent computer-based toolkit that will help and support people affected by dementia and/or Parkinson’s in their daily living.

People with chronic conditions should be in the centre of decision-making regarding their plans and goals for

  • daily living, including basic activities (e.g. feeding, dressing, hygiene, and mobility),
  • more advanced activities (e.g. personal finances, using transportation, telephoning, cooking, performing household chores, doing laundry, and shopping),
  • and other meaningful activities that help promote health and mental well-being (e.g. social occupations, intellectual pursuits, recreational pastimes).

However, there is limited involvement of these people and their informal carers (e.g. relatives or friends) in the design of technology linked tools that could be used to support their personal plans for independent living at home.

These activities of daily living vary from person to person, which is why we want to develop a person-centred life planning system for which they have as much control as possible and to which others might input (e.g. carers). Information from digital devices will be fed into the person-centred care planning system to monitor how well the individual is managing their independence at home, which alerts others to prompt action when there are signs of things going wrong.

The SCAMPI toolkit involves:

  • a simple user interface
  • devices placed in the home
  • advice and recommendations based on the defined plans and tracked data

Using a co-design approach, SCAMPI will support self-management decision-making, and empower participation in shared decision-making with relatives and carers. We will build a sustainable business model, which will ensure that people with dementia and/or Parkinson’s can afford to use the toolkit, as well as enable future business investment to support and grow the toolkit. SCAMPI will become an invaluable toolkit, which will help people remain healthy and independent in their homes for longer.

The research and delivery of outputs of this project are supported by: